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MARQUETTE — Five year old John Weekley from Alaska was suffering from 500-700 seizures every day before being diagnosed with Rasmussen’s Encephalitis, a rare neurological disease with no cause and no cure.
The disease typically attacks one side of the brain, often resulting in a hemisperectomy. John underwent the surgery to have part of his brain disconnected in October and has been seizure free ever since. However, because of the surgery, John has no mobility on his left side and no peripheral vision out of his left eye. He is still in the hospital for futher testing and therapy.
John loves firefighters especially since his dad, Tim, is a firefigther in Alaska. So, in the hopes of cheering him up in the hospital, family friends asked that people send fire department patches from across the country and beyond.
We here at Local 3 wanted to get involved and help out so we reached out to the U.P. community and the response was overwhelming! We sent off our first box to John with over 30 patches as well as some goodies from the Upper Peninsula. We will be sending another box in the coming weeks.
John’s dad, Tim Weekley, told Local 3…”I wish our hearts could speak as to how we feel knowing that there are so many people pulling for My little hero.Thank you is never enough or at least it sure doesn’t feel like it.”
For more information on John’s story click here.